Hospice is specialized type of care for those facing a life-limiting illness, their families and their caregivers.
- Hospice care addresses the patient’s physical, emotional, social and spiritual needs.
- Hospice care also helps the patient’s family caregivers.
- Hospice care takes place in the patient’s home or in a home-like setting.
- Hospice care concentrates on managing a patient’s pain and other symptoms so that the patient may live as comfortable as possible and make the most of the time that remains.
- Hospice care believes the quality of life to be as important as length of life
To learn more about the basics of hospice, please watch our video, Understanding Hospice Care, on this page:
Choosing to elect hospice care is an important decision that can greatly benefit the quality of life for a patient with a life-limiting illness in addition to proving support to a patient’s family during a difficult time.
To help you better understand how hospice care can benefit you or a loved one, we recommend that you review our list of Frequently Asked Questions (FAQs) listed below:
Is hospice for those with cancer only?
No. Hospice patients are living with a wide range of diagnoses including heart disease, cancer, dementias, lung disease and others. However, regardless of a patient’s condition—or age—hospices open their doors and their hearts to all persons diagnosed with life-limiting illnesses and their families.
Hospice is NOT a place.
Hospice services can be provided to a person with limited life expectancy and his/her family, wherever they live. This means a patient living in a nursing facility or long-term care facility and his/her family can receive specialized visits/contacts from physicians, nurses, aides, chaplains, social workers, and volunteers, in addition to other care and services provided by the nursing facility. The hospice and the nursing home will have a written agreement in place in order for the hospice to serve residents of the facility.
How does hospice care begin?
Typically, hospice care starts as soon as a formal request or a ‘referral’ is made. A hospice representative will visit the patient within 48 hours of referral, pending the physician’s approval, providing the visit meets the needs and schedule of the patient and family/primary caregiver. Hospice care begins within a day or two of referral. However, in urgent situations, hospice services may begin sooner.
The patient or a family member may “self-refer” and request an evaluation for eligibility for receiving hospice services.
What specific assistance does hospice provide?
Hospice patients and their families are cared for by a team of doctors, nurses, social workers, counselors, aides, spiritual caregivers, therapists, and volunteers— working together in a team to address the patient’s and family’s identified needs. In addition, hospices help provide medications, supplies, equipment, hospital services, and additional helpers in the home, as appropriate.
How does hospice manage pain?
Hospice nurses and physicians are experts in the latest medications and devices for pain and symptom relief. In addition, physical and occupational therapists assist patients to be as mobile and self-sufficient as possible, and they are often joined by specialists schooled in music therapy, art therapy, diet counseling, and other therapies.
Hospice believes that emotional and spiritual pain are just as real and in need of attention as physical pain, so it addresses these, as well. Counselors, including spiritual caregivers, are available.
Is there any special equipment or changes I have to make in my home before hospice care begins?
Your hospice provider will assess your needs, recommend any necessary equipment, and help make arrangements to obtain it. Often the need for equipment is minimal at first and increases as the patient’s needs change.
In general, hospice will assist in any way it can to make home care as convenient and safe as possible.
Is hospice care covered by insurance?
Hospice coverage is widely available. It is provided by Medicare nationwide, by Medicaid in most states, and by most private health insurance policies. To be sure of coverage, families should, of course, check with their employer or health insurance provider.
If the patient is not covered by Medicare or any other health insurance, will hospice still provide care?
The first thing hospice will do is assist families in finding out whether the patient is eligible for any coverage they may not be aware of. Barring this, most hospices will provide care for those who cannot pay, using money raised from the community or from memorial or foundation gifts.
If the patient is eligible for Medicare, will there be any additional expenses to be paid?
Medicare covers all services and supplies related to the life-limiting illness for the hospice patient. In some hospices, the patient may be required to pay a 5% or $5 “co-payment” on medication and a 5% co-payment for respite care. You should find out about any co-payment when choosing a hospice.
When should a decision about entering a hospice program be made—and who should make it?
At any time during a life-limiting illness, it is appropriate to discuss all of a patient’s care options, including hospice. By law the decision belongs to the patient. Because hospice care includes family members and other caregivers, they are also considered an important part of the decision-making process.
Sometimes, people have concerns about changing the focus of care from disease-modifying to focus on comfort care and quality of life. Hospice staff members are highly sensitive to these concerns and are always available to discuss them with the patient, family and physician.
What is Palliative Care?
If you are not familiar with the term “palliative” care, it is a medical specialty focused on managing the physical and emotional impact of serious illness.
Sometimes people think palliative and hospice care are synonymous. They are not. Some organizations provide both hospice and palliative care.
Hospice is a specific branch of palliative care for those with a terminal diagnosis. It is important to know you DO NOT have to forgo curative treatment or have a terminal diagnosis to receive palliative care. For more information, please visit, What is Palliative Care?
Choosing a hospice
One of the best ways to choose a hospice is to ask questions. A local hospice provider should be more than willing to help you understand their services and how they might be appropriate for your specific situation. For help locating a hospice provider in your area, please visit our Find My Hospice web page.
Different patients have different needs, and knowing what questions to ask a potential hospice provider can make all the difference. The National Hospice and Palliative Care Organization has developed some key questions to help identify what factors may be important to you and your family when selecting a hospice.
To learn more, visit our resources on Choosing a Hospice.
Hospice Compare: a public reporting website from Medicare offering quality information on Medicare-certified hospice providers.
Hear from a Hospice Patient
It can be difficult for people to understand the positive impacts hospice care has on patient’s lives during end-of-life. Watch the video below to hear the testimony of a real hospice patient – just one of millions who thank hospice for an improved quality of life!
Video provided by: Providence Health & Services - Oregon Region